Posts in month: September, 2010

For 3 years we have been seeing family therapists. The goal has always been to help my wife, Max, and me to be a family as we work through his ADHD, Asperger’s, and Bipolar issues.

It hasn’t been easy. This is not because Max has been resisting us; even though he has. And it isn’t because we haven’t been learning anything; because we have.

It is because there hasn’t been any consistency. We have gone through 5 or 6 different therapists. As each one comes in we have to start from the beginning. And they all start with what I call “the happy face” pages. That is, Mom, Dad, and Max are handed our own piece of paper. They have a number of faces drawn on them; each with a different emotion. One is happy; one is sad; one is angry; and so on.

As we go from individual to individual we must choose a face and describe what it means to us. Quite often we pick the one that we are feeling at that moment and talk about it.

The next week there will be another session similar to this. Then the following week we get another variation.

But we never see any changes!!

And Max doesn’t like to sit in these sessions. He is a doer. He doesn’t like just sitting around and talking about his feelings. It is okay if he is working on his bicycle while doing it. But he isn’t going to stare at a piece of paper and chatter on and on.

As usual our current therapist started just like all of the others: with “the happy face”. He soon discovered this wasn’t working for any of us. He changed things up to make sure Max is involved. And now he comes in with a schedule:

• We do 5 minutes of check in. That is, how is each one of us feeling today? Pick out a day since the last meeting that meant a lot to us and talk about it.

• Following that is a formal meeting which lasts about 20 minutes where we now talk about different issues. This is the time that Max hates the most and we generally cannot get him involved.

• Then we continue our conversation for 20 minutes through play. But we don’t do it by sitting on the couch. Recently we all moved out to the driveway and stood in a circle far enough away so that we could toss a ball to each of us. Before throwing it we would specify who was going to get it. That person would then say something nice about us. For example, Max has the ball and he wants to throw it to me. I would say something like “you are a great engineer.” He would then toss the ball to me and it is my turn.

• At the end it is Max time. For the last 15 minutes Max takes the therapist off to see his new project. Mom and Dad retreat back to the house.

This week something different happened. We went through the 5 minute check in and as expected Max would not get involved in the formal session. We continued on without him. The therapist brought out several sheets of paper which contained the following diagram:

As you can see it is a triangle. At the bottom right is the word “Actions”. On the bottom left is “Feelings”. At the top is the word “Beliefs”.

Our first goal was to list some of the actions that Max does that bothers us:

• Swearing

• Yelling and screaming

• Smashing

• Poking

• Inappropriate attention-getting

The words on the diagram are related. What are the feelings that Max has that are causing these actions? We came up with the following:

• Anger

• Anxiety

• Fear

• Sadness

• Insecurity

• Loneliness

Since Max isn’t here we are just guessing that these are what he is feeling. They aren’t numbered because they don’t necessarily correspond one on one with his actions. For example “sadness” does not necessarily incur “poking”.

Just like actions are caused by feelings; feelings are a result of the beliefs we have about ourselves. In this case we came up with:

• “Nobody loves me”

• “Nobody understands me”

• “I’m a horrible person”

• “I can’t do anything right”

• “I’m stupid”

These were our best guesses as to how Max feels about himself.

What I have described here is the furthest along we have ever gotten during the last 3 years of therapy. Forget about everything else I’m now seeing something we can work with in helping our family.

But this wasn’t the only surprise for this session. Max joined us once we had gotten this far. He came and sat between his Mother and me and looked at what we came up with. We showed him his actions and we told him how they were connected to his feelings. He looked through the list and pretty much agreed to what we had.

We then explained how beliefs fit into the picture and how they cause the feelings which spark the actions. We told him we didn’t really know what he believed but we had made some guesses. He read the list and nodded but then he said something else:

“I feel worthless.”

He said it very quietly.

We were stunned. We had always thought that we had done our best to build him up: “You did a great job on that project”, “Thank you for cleaning the sink. It looks very nice.”

But now we are seeing that something is being lost in translation. And the worst part is this path feeds on itself. What I mean is:

• Max feels worthless

• It makes him angry, sad, insecure, and lonely.

• So he screams, swears, and smashes things.

• People get angry with him so he feels more worthless and this continues the circle.

We’ve had a break through! Finally after 3 years! This is wonderful!

So now what do we do with this information?

But as the psychologist says to his patient, “Our time is up. We will continue this at our next session.”

So this week we should be discovering the next step.

Could this help in your family situations?

“On your way out will you buy my Dad some chewing tobacco?”

Whenever my wife asks me that it send chills down my spine.

I don’t like doing it.

I don’t want to do it.

She doesn’t understand. She thinks it is because I have to go out of my way to do it.

This isn’t the case. I do a lot for her parents. For example, I’m scheduled to take them both to the doctor next Tuesday. This is certainly out of my way but I do it because they are part of my family. It is also something they need and cannot do for themselves.

It goes deeper than that with the chewing tobacco.

My father-in-law has been chewing for over 70 years. It is a normal part of his life. It can be expensive. He goes through a bag every two days; at seven dollars apiece this can be a very expensive habit especially for someone who receives very little in social security and has no savings.

Whenever I mention the expense to my mother-in-law her response is always the same. It is his only pleasure in life so she doesn’t want to deprive him of it. As a result she lives without things that she needs just so he can be happy.

But this isn’t all of it.

You see, my Dad was a smoker. He would go through two packs a day. After 38 years of smoking he was diagnosed with throat cancer. He had to go through radiation to try to cure it. The first thing they did was embed gold nuggets into his throat as a reference point for the radiation.

The program he went through caused him to lose all of his hair and I watched him go from a strong, robust man to a frail oldster. He was 54. He took to wearing wigs and his teeth started falling out. I remember one day when he said “Watch this” and just pulled a tooth out. It came root and all. He then pushed it back in.

During this time his doctor told him for the treatment to be effective he had to stop smoking. And he tried to. He would go for days without a cigarette but the addiction kept bringing him back. In fact he would ask me to buy him some. I didn’t want to do it but I went for him. And he would always say “I have lived a long life, I don’t want to forego my pleasures.”

Sound familiar?

Fast forward 5 years. He is still smoking but it appeared that his cancer had been cured. That is, until the doctor announced that it had come back and had spread through the rest of his body. They started him on chemotherapy and I watched him deteriorate rapidly.

During that time I got sick. I’m convinced it was walking pneumonia. I coughed constantly. But like a true guy I didn’t bother to see a doctor. I had been looking for a house and I didn’t want to take the time. I remember that I finally found one and I was in the process of signing papers. My Dad went with me to the realtor’s office because he was cosigning for me. I was still coughing constantly.

Inside of a month he wasn’t functioning anymore. He was on oxygen and had to be helped with everything he did. On the last day at home he couldn’t talk and wasn’t even aware of his surrounding. My brother and I took him to the hospital where he died several days later.

He died surrounded by his family except me; I was at work. I left at noon to be with him. I rode the elevator up to his floor only to find them at the door waiting to leave. It was done.

His death certificate says he died of pneumonia.

I have never gotten over the fact that I supplied him with his cigarettes at the end and that I may have given him the pneumonia that killed him. He was my Dad and I idolized him and this is how I repaid him.

Now my wife asks me to buy her Dad chewing tobacco. True, he is in his 80s but I don’t want to be the one to contribute to his death.

But we aren’t supposed to deprive him of his “one pleasure in life”.

“Mrs Corr? This is Max’s van company. School starts tomorrow and we wanted to let you know that we will be picking him up at quarter of 8 in the morning.

“That won’t be enough time. School starts at 8:20 and it takes an hour to get there.”

“It will work. We’ve done an assessment and we know how long it will take.”

Funny, after 3 years of sending our kid to school on a van they still don’t believe we know what we are talking about. After 7:30 in the morning the traffic gets so bad that there is no way they can do it in less time. Hey, as it is when we drive down during a non-traffic time of day it will take us 40 minutes.

So on Max’s first day of school we were waiting at 7:30. He was so excited; he really missed being there.

At 7:35 it was: “Where’s the van?” “It’s on its way. It will be here in 10 minutes.”

At 7:40 it was: “Where’s the van?” “It’s on its way. It will be here in 5 minutes.”

At 7:45 it was the same thing.

At 7:50 it was the parents’ turn to ask: “Where’s the van?”

It actually showed at 8:00. Now we know that it isn’t going to get the kids to school on time that day. We talked to the driver and told her that just maybe she may want to pick them up a little earlier the next day. She agreed and informed us she still had 2 more to pick up before she headed off to school.

We got a call from the school at 9 o’clock to inform us the kids arrived safely…at 8:50; a half hour late.

True to her word though the driver showed up earlier the next day. She was out front at 7:30. We don’t know yet what time they got to school.

Max’s school started on September 1. Public schools don’t start until September 8. Traffic always becomes quite heavy after that. I can’t wait to see what time Max will be getting there then.

As my wife said the vans are required to get the kids there on time so this is their problem not ours.

But it bothers me too. I mean, as I mentioned earlier we have been doing this for 3 years. Every year we go through the same thing. A new van company gets the town contract and they have to be trained all over again by the parents.

We tell them one thing and they insist they know better than we do. They always try to do it differently. But in the end they find out we were right and they conform. Of course they don’t admit that we know what we are talking about. They call it their “learning process”.

It’s always the same. They don’t seem to understand that we parents are always thinking about our kids. And we have been doing it longer than the van companies.

I shouldn’t really complain. They are getting my son to school. Not only that, most, if not all, parents with special needs kids go through this. And it’s not just with the van companies. Every year a friend of mine ends up suing the town he lives in because they aren’t providing the services required by law to his daughter.

But really it is all a result of these different organizations trying to keep costs down while providing the best services they can. Add to that the dire straits our economy is in right now. I can really understand where they are coming from but even so it’s my kids or it’s your kid and we always want the best for them…don’t we?

So maybe the ride wasn’t that great but on the first and second day of school Max came home excited! Things are going great; he’s happy; he even has a new girlfriend.

So welcome back to school and no worries with the van company…